8 tips for family caregivers of dementia patients
We encounter the topic of dementia all the time. In 2019, there were 131,300 dementia patients in Switzerland, and the trend is steadily rising. The term dementia comes from the Latin demenzia and means ‘without mind, without intellect’. And that is exactly what makes us so helpless. The people we knew lose their most precious asset, their mind, and just as their essence disappears for us, the world around them disappears for them.
Family caregivers of dementia patients need support
Family caregivers are often overwhelmed and extreme cases show us how desperate they can become. In November 2020, for example, a 92-year-old man in Germany suffocated his partner with dementia, whom he had been caring for at home. Disasters like these highlight the plight of relatives and shed light on the current care situation. Again and again, the problem arises that relatives do not dare to accept help.
Here we give you tips on how to deal with dementia patients and what support you can get:
Tip 1: Find out about the clinical picture of dementia patients
There are various institutions such as the Alzheimer's Foundation, Spitex facilities, Migros, etc., which offer a wide range of services on the subject of dementia. In addition, there are now many guides for those affected and their relatives (e.g. "Demenz - Den Alltag mit Betroffenen positiv gestalten" by Stefanie Becker).
Tip 2: Structure your daily routine
It is important for dementia sufferers to maintain repetitive processes and routines. An oversupply of stimuli irritates them and can quickly lead to excessive demands and uncertainty.
Tip 3: Habits of dementia sufferers
It is best if cherished habits can continue to be supported. Anything familiar gives the patient a good feeling. They feel safe and secure. Drinking coffee with friends or going for a regular walk should be maintained for as long as possible.
Tip 4: Practice calmness
People with dementia tend to act illogically. They have a mind of their own and their own ideas. As a rule, they are difficult to convince with arguments. Emotional fluctuations and aggression are symptoms of the disease. In the event of a conflict, remain calm and try to distract the affected person by directing their attention to other things. There is no question that this can be very stressful. In any case, seek help from appropriate organizations in good time if you think you don't know what to do next.
Tip 5: Don't be impatient with dementia patients
You need a lot of patience when dealing with dementia patients. Nothing happens quickly here. It starts with speaking. Speak slowly and in simple sentences. It is often necessary to repeat what has been said several times. Give your counterpart enough time to respond.
Tip 6: Find your bearings
What day is it today? When do I have to go where? Those affected find it difficult to orient themselves in terms of time and space. A large calendar with current dates and a large clock can help. A fixed place, e.g. a blackboard that can be written on, can also help.
Tip 7: Fond memories
The past plays an important role for people with dementia, as long-term memory is retained for longer. You can talk together about past positive events. Let them tell you stories from their childhood. Such a journey through time can suddenly reveal completely new things about your loved one's life.
Tip 8: Take care of yourself
Prevent yourself from being overwhelmed right from the start. You won't be able to cope with this huge task if you don't manage your resources. You should take time out to recharge your batteries. This is where private Spitex providers can step in at short notice. But you can also make use of support in the household. Take advantage of the wide range of help on offer. In addition, if possible, try to talk to people who are in the same situation.
